Missing a dose of LDN and other, random thoughts

he other night I fell asleep while cuddling with my son at bedtime. I was very tired, and so my husband and older kids let me sleep.

It wasn’t until the next afternoon, when my kids asked why I was forgetting so much, stuttering and off balance that I realized I had missed my ldn the night before.

By 9 pm that night I was almost unable to walk because my balance was just so horrible. My left leg was completely numb up from toes to the knee and the inside of my left arm felt weak and tingled. Vision was as bad as it was before I started the ldn, and I was stuttering so bad my own kids couldn’t understand me. I finally switched to sign language because speech was almost impossible and for some reason, when I can’t talk, I can usually still sign.

From what I’ve learned from the ldn experts, my response to missing a dose was extreme. Most people who see symptom relief from ldn do regress when the go off the med, but it usually takes a couple days. Of course, not every person who takes ldn for MS has any symptom relief. That’s not the purpose of the med. Ldn is taken stop progression of the disease.

I resumed the ldn that night, and was perfectly back to my new normal two days later. Yeah. it took 2 days to get back to where I was before I missed that dose. My family now has explicit instructions to wake me up for my med regardless of how tired I am or if I’m sick. I’ve gotten used to having no MS symptoms, and I’d like to keep it that way, if I can.

Even after a month, it is still amazing to me how much ldn has given me my life back, I can keep up with my kids, and stay up to spend time with my husband.. I’m not exhausted all the time any more, and I’m almost never in pain anymore. No more muscle twitches.. I can play football with my 12 yr old daughter again..I’m thinking about coaching her team next season – something she’s wanted me to do for over a year now, but I’ve been unable to because of the MS. I’m not too inclined to call any medication a “miracle drug” but ldn is about as close to it as you can get. I will be forever thankful for the person who introduced ldn to me

Also, after talking to the new doctor a little more, he’s fairy convinced the MS had changed from RRMS to SPMS. He made this determination because I was to the point where I had symptoms every day without a break. Every day at the same time I would start to have symptoms, and the pain never went away. It seemed to have stopped remitting. Of course, I’m not too sure that he’s right about the change in MS classification, and honestly, I’m not even sure it matters.

The new dr isn’t doing as much research into ldn as I’d hoped. And while he supports my using alternative treatments and is willing to work with what I’m doing, he won’t be helping me figure out the best ways to treat my ms and asthma with nutrition and herbals. But that’s okay.. I can do my own research just like I always have. As long as he’s willing to understand that herbals and nutrition will always be my first treatment choice for ANY illness, we’re good. I did find out from another patient of his that he does suggest using garlic to treat bronchitis and pneumonia, though.. so that is a huge point in his favor.

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